Well, I've begun writing my memoir on my new life, living with my new disease, MS (multiple sclerosis). I sent a copy of the prologue to my new mentor a few days ago, and I'll get some feedback from her the next time we meet up, in a few week's time.
Just to make it all a little more interesting, I've decided to include prose and verse in this memoir, including some poems I've already written about things that have been important in my first couple of years of living with MS. I love poetry, writing verse helps me to work through my thoughts.
The writing of this memoir will be a thing I don't do totally on my own. My mentor, Ray Tyndale will be there with me, and so will lots of people who are living their lives with MS too. I hope to get in contact with people to find out about the things they'd like to know, and the things that have helped them, too.
Having a disease that can impact on a person's mobility can be devastating. If you can't travel on your own, and can't find someone to help you, I can barely begin to understand how it might feel. Personally, I'm doing well. I can still drive, walk a little bit and so on. I'm able to use my fingers and my voice, so communication is relatively simple.
It's not that good for some sufferers though. I hope my memoir, once it's written and released out into the world, will be able to offer some hope and help to everyone who wants to know more about the MS life. If nothing else, I hope my memoir will help people to explain to their loved ones, friends and/or carers, what their life is like.
If you have anything you think could or should be in my book, please let me know! I'll do my best to include it.
2 comments:
it sounds like a very worthwhile project, Carolyn and one that hasn;t been done before by an Australian poet. I trhink it is a good idea to include poetry as that is how we know you --- as a poet
Thank you John.
That's how I think of myself, poet, wife, mother, dog lover and a large number of lesser things, living my life with MS as best I can.
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